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  • ASCQ-Me

    ASCQ-Me stands for Adult Sickle Cell Quality of Life Measurement Information System. ASCQ-Me is a patient-reported outcome measurement system that assesses the physical, social, and emotional impact of Sickle Cell Disease (SCD) on adults.

  • MEASURES

    The development of ASCQ-Me measures used a wide range of qualitative and quantitative research methods which included methods similar to those used to develop the Patient Reported Outcome Measurement Information System (PROMIS).

  • SCIENCE

    ASCQ-Me measures were developed based on formative research with 120 adults with sickle cell disease from regions across the U.S.  They were evaluated using both classical and modern psychometric theory.

ASCQ-Me

What is ASCQ-Me, Why use, Who uses, How to use

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Measures

Domain Framework, Sample questions, Electronic assessment, User’s Manual

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Science

ASCQ-Me Methodology, Presentations and Publications


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ASCQ-Me stands for Adult Sickle Cell Quality of Life Measurement Information System, a patient-reported outcome
measurement system that assesses the physical, social, and emotional impact of Sickle Cell Disease (SCD).