We conducted a comprehensive program of formative research to identify the concepts behind the ASCQ-Me measures including:
- NHLBI Adult SCD Working Groups (WGs)
- ASCQ-Me literature review (LR)
- ASCQ-Me patient focus groups (FGs)
- ASCQ-Me patient critical incident interviews
- ASCQ-Me patient advisors
- ASCQ-Me provider critical incident interviews (CIIs)
- ASCQ-Me clinical researcher advisors
Key:
Solid lines indicate primary source
Dashed lines indicate supplemental source