ASCQ-Me stands for Adult Sickle Cell Quality of Life Measurement Information System. ASCQ-Me is a patient-reported outcome measurement system that assesses the physical, social, and emotional impact of Sickle Cell Disease (SCD) on adults.
The development of ASCQ-Me measures used a wide range of qualitative and quantitative research methods which included methods similar to those used to develop the Patient Reported Outcome Measurement Information System (PROMIS).
ASCQ-Me measures were developed based on formative research with 120 adults with sickle cell disease from regions across the U.S. They were evaluated using both classical and modern psychometric theory.
What is ASCQ-Me, Why use, Who uses, How to use
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Domain Framework, Sample questions, Electronic assessment, User’s Manual
ASCQ-Me Methodology, Presentations and Publications
ASCQ-Me stands for Adult Sickle Cell Quality of Life Measurement Information System, a patient-reported outcome measurement system that assesses the physical, social, and emotional impact of Sickle Cell Disease (SCD).