Conceptual Framework Development

We conducted a comprehensive program of formative research to identify the concepts behind the ASCQ-Me measures including:

1. NHLBI Adult SCD Working Groups (WGs)
2. ASCQ-Me literature review (LR)
3. ASCQ-Me patient focus groups (FGs)
4. ASCQ-Me patient critical incident interviews
5. ASCQ-Me patient advisors  
6. ASCQ-Me provider critical incident interviews (CIIs)
7. ASCQ-Me clinical researcher advisors 

Key:

Solid lines indicate primary source
Dashed lines indicate supplemental source