ASCQ-Me was developed following a multi-pronged approach to formative research comprised of 1) a comprehensive review of the literature; 2) eleven focus groups including 84 adults with SCD; 3) in depth, individual interviews with 36 adults with SCD and 15 providers of clinical care; and 4) a field test of candidate ASCQ-Me questions in seven different sites across the United States.
The links to the left detail the ASCQ-Me measures’ phases of development.